Tuesday, September 30, 2008

In Memoriam



Paul Newman
1925 - 2008

The only male actor in Hollywood not too scared to play the lead, Brick Pollitt, in Tennesse William's 'Cat On a Hot Tin Roof' in 1958.

Brick: One man has one great good true thing in his life. One great good thing which is true! I had friendship with Skipper. You are namin' it dirty!

A man who gave more than $250 million away to charity.

God bless his soul.

Sunday, September 28, 2008

Denial



Are Hiv+ Gay Men really ill?


I know it sounds contentious, but honestly, do we look ill? sound ill? act ill?


Well, no. Or at least no-one sees us when we are. And when asked, we will sometimes acknowledge the fact but will almost always deny the results of being ill.


Its hardly surprising.

Chronically ill people can choose to accept or deny their chronic illness. 

Even though for a short while being 'Poz' may have had its heyday as 'trendy', being chronically ill does not fit into the traditional lifestyle of a Gay Man. 


Denial is in fact the only way out for many Hiv+ Gay Men.

Not denial of being hiv+, nor of the disease itself, but of being 'ill' because of it.


As a sub-sub-sub-culture, we have developed this extraordinary schizophrenic atitude towards our own 'Poz'ness'.

On the one hand we are chronically ill and in need of a constant supply of high end highly toxic expensive designer drugs to keep us alive, and on the other hand its 'life as usual'.


Not withstanding the Dutch tendency to minimise emotion, I find it incredible how our mind's self-defense mechanism kicks in when confronted with something of the magnitude of 'life threatening disease'. 

What does the mind use to avoid overload, you've guessed it, denial.


Its amazing to me how the media manages to present us as victim and perpetrator. What's even more amazing is the Aids machine in the Netherlands that manages to do exactly the same. But with one exception, the emphasis of the 'Prevention lobby' is on perpetrator and not victim.


We, as Hiv+ Gay men need to see ourselves as neither. 


We are not, always, sometimes, never have been patients, clients, victims, perps, murderers, crazies, junkies, drug abusers, sex addicts, pathetic, needy, healthy, hypochondriacs ....


We need to create our own image.

We need to stop the denial.


Saturday, September 27, 2008

Optimism




No, I refuse to be optimistic about hiv and/or aids.

And no, that doesn't mean I have to be cynical either.

Realistic.

In New York, the third leading cause of death in men under the age of 65 is still aids.

People with hiv climb mountains, swim rivers, dance the tango .... and die.

Don't be silly. Honestly, who still dies from AIDS?

And no, I don't mean all the little brown babies in Africa.

In a world where people are still dying of opportunistic diseases as a result of suppressed immune systems I see no reason to lie.

I mean all the Western European Gay men whose HAART medication fails to handle the virus, whose liver gets eaten away by cancer because they are more at risk than non-hiv'ers, whose lungs rot because they smoke/have smoked and are 3 times more at risk of acquiring lung cancer.

Men who have never been tested and now see themselves as too old to catch hiv, die because the medication comes too late. Because they only find out they are infected when they wake up in the Emergency Room of their local hospital.

Men who have religiously taken their medication for 10 years or more and now die of rectal cancer, lung cancer, heart disease, stomach cancer, lymphoma's, liver and kidney failure etc. All or none of which may or may not be related to the hiv virus and/or medication against it.

Men who were infected with a hiv strain that is resistant to known drugs, who live day by day until the next new aids drug comes on the market. Brave men who sometimes just can't hold on long enough.

Men who lose faith in medicine, who turn to non-western doctors for a gentler way of surviving, who are tired of medication, tired of fighting.

No,

Being a Gay man with hiv is not something to be optimistic about.

I can live till I'm 90, but I will probably still have the problems to face that I face every day.
Chronic tiredness, swollen glands, diarrhea, opportunistic infections.
The anxiety of discovering a bruise, a mark, a sore, a pain, an ache. What is it? Its nothing. Its everything. Its nothing.

Optimism is a word we use to ignore hiv and aids.

Optimism makes it all go away.

It won't go away.

Thursday, September 25, 2008

Leo



Has it really been 2 1/2 years since the beginnings of Poz + Proud? My lord, where does the time go? Especially when we were having so much fun ....

What did we start with?

Leo and his enthousiasm, energy, and bloody mindedness. Plus a small but vocal group of Hiv+ Gay men who were (are) very unhappy about how the world treats/handles/copes with them (us).

What has been achieved?

I'll leave that over to others now that I am no longer actively involved.

But the driving force was always (and I don't think Ton will mind me saying this), Leo.

Dear god I haven't/don't always agree with what he says, but I damn well listen when he says it.

X

Saturday, September 20, 2008

Sorry ....




Sorry, sorry, sorry ...... Auntie Dottie has been taking over my life completely the last few weeks and leaving me little inclination to vent my feelings here.

Her new website is up and running thanks to Mike - www.dorothyglamour.com 

Lots of pics in 'Dottie's Albums', history in 'Dottie Herself', a blog in 'Dottie Rambles', and 'Ask Dottie' (because she's been dying to do an agony aunt column).

Have a look and see for yourself, but look back here once in a while ;-)

Sunday, September 14, 2008

Archive



23 / 05 / 2006

Tired, sore, worried about my health in general.
I think the meeting went well and I presented myself well.

Waiting for Spaghetti Bolognese here in Terminal 1 at Heathrow.
Its cleaner than I remember but that's hardly difficult to achieve. So I'm trying to do the right thing by eating something.

Trying also to be nice to myself, gentle on myself. I've got the starting of a cold and it worries me more than I thought it ever would. Of course I wish I was home. Couldn't sleep last night in the hotel in spite of the sleeping pill (which has been knocking me out like a light lately). Strange environment? Airco? Whatever ....

Feeling sad now - maybe just the muzak, the tiredness.

If one thing has been proved the last 2 days in London is that I can still do this sort of job better than most other people .... and I'm not much older than some of the people in this company.

I wanna go home ....

I find myself looking at men and thinking 'is he?' .... 'the cheeks are sunken but does that mean ....?'
I can't feel like this the rest of my life and expect myself to function normally. One night away from home and I'm already ill. Sore throat, cold sores, bitten the inside of my mouth too .... and my arse .... its a bloody massacre down there.

I've got to find a doctor and probably get treated quickly because this is not what you would call normal, but how?

Damn it! How do I solve this?

My greatest concern is staying healthy enough to do this new job properly, and keep it.

Even my arm pain has returned, has to be stress, doesn't it? And the clicky joints, what's that all about? Is it all related? Possible? Probable?

Pull a mask over your nose and mouth and breathe normally .... get me the fuck back to Amsterdam ....

Tuesday, September 9, 2008

Julee Cruise - Rockin' Back Inside My Heart


So this is what that wedding guest meant ....

Monday, September 8, 2008

MOOI MAN Groningen


Lieve René

Sunday, September 7, 2008

Milk Trailer (HQ)


At long last